Erin and Patrick are on the way back from Philadelphia with news of stable scans, which is reassuring and offers hope that next week’s stem cell collection and, hopefully, MIBG treatment will arrest any disease progression underway and, even better, greatly reduce Patrick’s disease burden.
There are times in life when you know the content of a message before it is received, and Monday night proved to be one of those moments. Patrick’s scan was read as “stable” last week in Philadelphia, but it looked horrible to me, leaving me unsettled and anxious.
Posted Jan 19, 2011 Erin and Patrick are in flight headed home. His scans are stable. We are grateful but on alert. His bone marrow remains positive. We won’t have final results until tomorrow. We hope the percentage of NB cells is lower of course. His December 22 urine markers were higher than November, which […]