March 28, 2016
Today we checked in to Scottish Rite for Burke’s 2nd round of a newer treatment for refractory (stubborn) neuroblastoma, Immunotherapy with 2 types of chemo. Prior to this (and after the updates above) Burke had a Stem Cell Transplant during late November and early December (3.5 weeks inpatient). It was a rough couple of weeks, but he improved and following 12 rounds of radiation in January, we scanned and he has 2 boney spots left, his right orbit and left tibia. CT, MRI and Bone Marrows were clear! We will do an MIBG scan in about 2 weeks and this will hopefully prove that Burke is finally NED, but we will still have another 4-5 rounds of immunotherapy. Thanks again to everyone for your continued thoughts and prayers.